Livvy Update

For those of you that care here is an update on how Miss Olivia is doing.  She was officially diagnosed with laryngomalacia by the ENT back in February (I think anyway, time is kinda running together).  Her labored breathing was making it pretty hard for her to eat and and breath and sleep, so she was working so hard to breath that she is burning more calories than she is able to take in.  So we talked to Occupational Therapists at Primary's and got some ideas on how to feed her to make her eat better, different holds and such.  We've talked to Dietary at Primary's and got some goals about what she should be taking in calorie wise.  She is only getting about 330 calories a day and should be getting almost 600 to gain what she needs to keep gaining weight like she should.  So we are looking at adjusting her formula concentration and added a fat supplement to her bottles.  And if she will continue to take in the same amount of fluid with the higher concentrated calories she should gain the weight, but there is the challenge-getting her to drink that same fluid,higher concentrated-babies tend not to like it concentrated like that.  We have also added another medication for her reflux in the hopes that if she is super comfortable in that regard she will continue to eat more.

If all of this doesn't work in the next couple of weeks then its a nasogastric tube and feedings at night for Olivia.  It's a good thing her mommy is a freakin kick a** nurse ;)  But we really don't want to have to do that cuz it can bring on all its own problems.  So we are hopeful that we can see some L-B's come on this skinny little girl of ours!